Psychological Issues in Amyotrophic Lateral Sclerosis (Record no. 81762)

MARC details
000 -LEADER
fixed length control field 02919naaaa2200325uu 4500
001 - CONTROL NUMBER
control field https://directory.doabooks.org/handle/20.500.12854/57315
005 - DATE AND TIME OF LATEST TRANSACTION
control field 20220220103734.0
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
International Standard Book Number 978-2-88919-758-3
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
International Standard Book Number 9782889197583
024 7# - OTHER STANDARD IDENTIFIER
Standard number or code 10.3389/978-2-88919-758-3
Terms of availability doi
041 0# - LANGUAGE CODE
Language code of text/sound track or separate title English
042 ## - AUTHENTICATION CODE
Authentication code dc
100 1# - MAIN ENTRY--PERSONAL NAME
Personal name Gianluca Castelnuovo
Relationship auth
245 10 - TITLE STATEMENT
Title Psychological Issues in Amyotrophic Lateral Sclerosis
260 ## - PUBLICATION, DISTRIBUTION, ETC.
Name of publisher, distributor, etc. Frontiers Media SA
Date of publication, distribution, etc. 2016
300 ## - PHYSICAL DESCRIPTION
Extent 1 electronic resource (103 p.)
506 0# - RESTRICTIONS ON ACCESS NOTE
Terms governing access Open Access
Source of term star
Standardized terminology for access restriction Unrestricted online access
520 ## - SUMMARY, ETC.
Summary, etc. Amyotrophic lateral sclerosis is a fatal and progressive disease, characterized by progressive muscles weakness, with consequent loss of physical capacities. Patients become relentlessly immobile and, in the late stages of the disease, develop a "locked-in" state in which only residual muscular movement is possible, but the intellect and the personality usually remain unimpaired. At now, there is no cure for ALS. The psychological impact of the disease is huge, on both patients and caregivers. Aim of the present Research Topic is to collect new evidence about quality of life, depression, anxiety, pain, spiritual and existential issues, hope and hopelessness in the ALS field, with attention to both patients and their caregivers. Emphasis will be provided to the investigation of psychological support and the possible role of psychologists in this challenging field. Keywords: Amyotrophic Lateral Sclerosis; Health Psychology; Clinical Psychology, Motor Neuron Disorder; Quality of Life. Subtopics: The subtopics to be covered in the Research Topic include, but not limited to: 1. Assessment of psychological variables in ALS 2. Quality of life during the course of the illness 3. Impact of technological assistance to illness (wheelchairs, NIV...) 4. Interfaces among biological, psychosocial, and social factors 5. Psychological and psychotherapeutic interventions 6. Couple and family relationships 7. Research methodology, measurement and statistics 8. Cultural and social features of ALS 9. Professional issues, including training and supervision 10. Implications of research findings for health-related policy
540 ## - TERMS GOVERNING USE AND REPRODUCTION NOTE
Terms governing use and reproduction Creative Commons
Use and reproduction rights https://creativecommons.org/licenses/by/4.0/
Source of term cc
-- https://creativecommons.org/licenses/by/4.0/
546 ## - LANGUAGE NOTE
Language note English
653 ## - INDEX TERM--UNCONTROLLED
Uncontrolled term clinical psychology
653 ## - INDEX TERM--UNCONTROLLED
Uncontrolled term Amyotrophic Lateral Sclerosis
653 ## - INDEX TERM--UNCONTROLLED
Uncontrolled term medical psychology
653 ## - INDEX TERM--UNCONTROLLED
Uncontrolled term Quality of Life
653 ## - INDEX TERM--UNCONTROLLED
Uncontrolled term Health Psychology
653 ## - INDEX TERM--UNCONTROLLED
Uncontrolled term Chronic disorders
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Francesco Pagnini
Relationship auth
856 40 - ELECTRONIC LOCATION AND ACCESS
Host name www.oapen.org
Uniform Resource Identifier <a href="http://journal.frontiersin.org/researchtopic/782/psychological-issues-in-amyotrophic-lateral-sclerosis">http://journal.frontiersin.org/researchtopic/782/psychological-issues-in-amyotrophic-lateral-sclerosis</a>
Access status 0
Public note DOAB: download the publication
856 40 - ELECTRONIC LOCATION AND ACCESS
Host name www.oapen.org
Uniform Resource Identifier <a href="https://directory.doabooks.org/handle/20.500.12854/57315">https://directory.doabooks.org/handle/20.500.12854/57315</a>
Access status 0
Public note DOAB: description of the publication

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