000 02736naaaa2200313uu 4500
001 https://directory.doabooks.org/handle/20.500.12854/72283
005 20220219193300.0
041 0 _aEnglish
042 _adc
072 7 _aMBX
_2bicssc
072 7 _aHBLW
_2bicssc
072 7 _aHBJD1
_2bicssc
100 1 _aMeyer, Jessica
_4auth
700 1 _aMoncrieff, Alexia
_4auth
245 1 0 _aChapter 2 Family not to be informed? : The ethical use of historical medical documentation
260 _aManchester
_bManchester University Press
_c2021
300 _a1 electronic resource (28 p.)
506 0 _aOpen Access
_2star
_fUnrestricted online access
520 _aWhat are the ethics that shape or should shape engagement with historical medical data, particularly archives containing patient voices? This question has come to the fore through the ‘Men, Women and Care’ project, a European Research Council-funded project creating a database of information drawn from the PIN 26 personal pension award records from the First World War. Held by the National Archives, London, these records contain a wealth of personal information, including potentially sensitive details of medical conditions and diagnoses, as well as material concerning stigmatising social situations, such as domestic violence, prostitution and illegitimacy. Using material drawn from ‘Men, Women and Care’, this chapter considers the opportunities presented and challenges posed by this material as sources for historical analysis. It considers issues of both disciplinary practice and theoretical framing to explore the position of the historian in relation to analysing and disseminating the historical patient voice. In doing so, it asks what use historians can and should make of this information and what steps the historical community might consider taking to articulate a code of ethics around practice that is sensitive both to family feeling and academic enquiry.
540 _aCreative Commons
_fhttps://creativecommons.org/licenses/by/4.0/
_2cc
_4https://creativecommons.org/licenses/by/4.0/
546 _aEnglish
650 7 _aHistory of medicine
_2bicssc
650 7 _a20th century history: c 1900 to c 2000
_2bicssc
650 7 _aBritish & Irish history
_2bicssc
653 _aconsent; ethics; family history; footnotes; stigma; war pensions
773 1 0 _0OAPEN Library ID: https://library.oapen.org/handle/20.500.12657/50925
_tPatient voices in Britain, 1840–1948
_7nnaa
856 4 0 _awww.oapen.org
_uhttps://library.oapen.org/bitstream/20.500.12657/50925/1/9781526154897_ch2.pdf
_70
_zDOAB: download the publication
856 4 0 _awww.oapen.org
_uhttps://directory.doabooks.org/handle/20.500.12854/72283
_70
_zDOAB: description of the publication
999 _c38823
_d38823