000 02919naaaa2200325uu 4500
001 https://directory.doabooks.org/handle/20.500.12854/57315
005 20220220103734.0
020 _a978-2-88919-758-3
020 _a9782889197583
024 7 _a10.3389/978-2-88919-758-3
_cdoi
041 0 _aEnglish
042 _adc
100 1 _aGianluca Castelnuovo
_4auth
700 1 _aFrancesco Pagnini
_4auth
245 1 0 _aPsychological Issues in Amyotrophic Lateral Sclerosis
260 _bFrontiers Media SA
_c2016
300 _a1 electronic resource (103 p.)
506 0 _aOpen Access
_2star
_fUnrestricted online access
520 _aAmyotrophic lateral sclerosis is a fatal and progressive disease, characterized by progressive muscles weakness, with consequent loss of physical capacities. Patients become relentlessly immobile and, in the late stages of the disease, develop a "locked-in" state in which only residual muscular movement is possible, but the intellect and the personality usually remain unimpaired. At now, there is no cure for ALS. The psychological impact of the disease is huge, on both patients and caregivers. Aim of the present Research Topic is to collect new evidence about quality of life, depression, anxiety, pain, spiritual and existential issues, hope and hopelessness in the ALS field, with attention to both patients and their caregivers. Emphasis will be provided to the investigation of psychological support and the possible role of psychologists in this challenging field. Keywords: Amyotrophic Lateral Sclerosis; Health Psychology; Clinical Psychology, Motor Neuron Disorder; Quality of Life. Subtopics: The subtopics to be covered in the Research Topic include, but not limited to: 1. Assessment of psychological variables in ALS 2. Quality of life during the course of the illness 3. Impact of technological assistance to illness (wheelchairs, NIV...) 4. Interfaces among biological, psychosocial, and social factors 5. Psychological and psychotherapeutic interventions 6. Couple and family relationships 7. Research methodology, measurement and statistics 8. Cultural and social features of ALS 9. Professional issues, including training and supervision 10. Implications of research findings for health-related policy
540 _aCreative Commons
_fhttps://creativecommons.org/licenses/by/4.0/
_2cc
_4https://creativecommons.org/licenses/by/4.0/
546 _aEnglish
653 _aclinical psychology
653 _aAmyotrophic Lateral Sclerosis
653 _amedical psychology
653 _aQuality of Life
653 _aHealth Psychology
653 _aChronic disorders
856 4 0 _awww.oapen.org
_uhttp://journal.frontiersin.org/researchtopic/782/psychological-issues-in-amyotrophic-lateral-sclerosis
_70
_zDOAB: download the publication
856 4 0 _awww.oapen.org
_uhttps://directory.doabooks.org/handle/20.500.12854/57315
_70
_zDOAB: description of the publication
999 _c81762
_d81762